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  • Medical Stories Strength in Struggle (Season 6, Episode 9)
  • TV Episode | Documentary

Medical Stories

Strength in Struggle (Season 6, Episode 9)
TV Episode | Documentary
Kaitlyn, 33, learned that her daughter, Judith, had a condition called CDKL5 deficiency disorder (CDD) when she had convulsions shortly after her birth. Along with her epilepsy, Judith, now 11, also has trouble with focusing on faces, ...See moreKaitlyn, 33, learned that her daughter, Judith, had a condition called CDKL5 deficiency disorder (CDD) when she had convulsions shortly after her birth. Along with her epilepsy, Judith, now 11, also has trouble with focusing on faces, moving on her own, and speaking with others. At first, Kaitlyn was overwhelmed with the responsibility of caring for Judith as a new mother. But as she shares with Medical Stories in National Harbor, Maryland, her family helped provide Kaitlyn the strength she needed to support her daughter. Meanwhile, in Sewell, New Jersey, 60-year-old Sandra is living with Pompe disease, a genetic disorder that severely weakens a person's muscles. Because the condition is rare, it took decades before Sandra received a correct diagnosis. Medical Stories sits down with Sandra, who tells us about her journey to get answers to the questions she's had for years - and how even after her diagnosis, she refuses to let the disease "take over my life." Strength in Struggle also features in-depth commentary from renowned experts Elia M. Pestana Knight, MD, FAES, FACNS, Pediatric Epilepsy, Cleveland Clinic Epilepsy Center; Orrin Devinsky, MD, Director, NYU Langone Comprehensive Epilepsy Center; and Barbara K. Burton, MD, Medical Geneticist, Ann and Robert H. Lurie Children's Hospital of Chicago. See less
Read more: Plot summary
Cinematographers
Joel Kaplan | Eugenio Wilman
Editors
Ted Ditmyer (online editor) | Joel Kaplan (online editor) | Nektarios Voniatis (online editor) | Devon Walter Dulaney (online editor)
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Status
Edit Released
Updated Jul 7, 2024
Release date
Jul 7, 2024 (United States)

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