The Boy Whose Skin Fell Off - Production & Contact Info

The Boy Whose Skin Fell Off (2004)
TV Movie | 50 min | Documentary

Primary photo for The Boy Whose Skin Fell Off

The Boy Whose Skin Fell Off (2004)

TV Movie | 50 min | Documentary

A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores...See moreA year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full. Written by Leonie Davidson Channel 4 See less

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3 cast members

Name	Known for
Edna Kennedy Self Self See fewer	The 50 Greatest Documentaries (2005)
Jonny Kennedy Self Self See fewer	The Boy Whose Skin Fell Off (2004)
Nell McAndrew Self Self See fewer	The Impressionable Jon Culshaw (2004)

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